April 9th has stood
out in my mind for a long time. To me, April indicates that spring is
just around the corner. April 9th also happens to be the
birth-date of a dear friend of mine, someone I’ve known since high
school. This year April 9th took on an entire new meaning.
That date would mark the first of two surgeries that I would need to
keep the dreaded word, cancer, at bay.
Shortly
before April 9th,
I was diagnosed with a type of oral carcinoma that had settled in my
tongue. Three doctors teased me about discontinuing chewing tobacco,
thinking they were funny. But I guess that is what usually triggers
this sort of thing. In my case, we’re still trying to figure out
the culprit.
I do have an autoimmune condition (Lupus) which can cause all kinds
of adventures. And a genetic wild card—my paternal grandmother
suffered from a type of oral cancer. Regardless, something I thought
was just an annoying canker sore, morphed into a condition that was
alarming.
As
the doctor who would be performing the surgery explained the ins and
outs of what I would be enduring, phrases like: “It may be
difficult to speak.” “You may not be able to swallow for a
while.” or “You may need speech therapy to restore these two
abilities,” haunted me. Until they were in the middle of the actual
surgery, they wouldn’t know how much of my tongue would need to be
removed. So we told family members, friends, and neighbors what was
going on, and asked for their prayers. We weren’t sure what else to
do.
April
9th came all too quickly. My tongue was already sore from
a biopsy that had taken place a few days before. If that was any
indication of what was ahead for me, I wasn’t sure I wanted to go
through with the surgery. And yet I knew my best chance to survive
this ordeal, was to obediently submit to all that lay in store.
So
on April 9th, we arrived in a timely fashion for surgery.
And it wasn’t long before I was whisked away for the procedure.
As
all of you know, in the middle of all of that, the Covid-19 virus was
rearing its ugly head. Many precautions had to be taken before my
surgery could take place, including a test to ensure that I didn’t
have this disease. When my test came back negative, the surgery was
scheduled.
Kennon
was allowed to be with me on the 9th, but he had to remain
in my designated hospital room until I could leave the hospital that
day.
And
because they didn’t want to keep me in the hospital any longer than
was absolutely necessary because of the Covid risk, I was released to
go home later that same day. In the words of my sons, “Leave it to
Mom to develop cancer during a world-wide pandemic!”
In
many ways, this adventure was like standing near a precipice. Far
below lay a deep, scary canyon. Ahead was a tiny, swaying bridge that
didn’t look very sturdy, and I was being asked to trust it to get me
to the other side. I wasn’t sure I possessed the courage or
stamina to do so. And then I was flooded with peace. I don’t know
how else to describe it, but I knew it was a direct result of the
numerous prayers that had been offered on my behalf. I’ve always
known that prayer is a very real gift—it’s how we communicate
with our Father in heaven. And I’ve known that prayer on behalf of
others works—I’ve seen it before—but never in my life have I
felt as carried as I was the day I had to cross that scary canyon
alone. And yet, I wasn’t alone. I could literally feel the love of
so many, and an assurance that no matter what, all would be well.
So,
when the time came, and I was wheeled inside the surgical room, I
slipped down from my gurney, and hopped up onto the surgical table,
ready to face what was ahead. Shortly after that, the
anesthesiologist did his job and the lights went out for me.
When
I came around in recovery, I was relieved to still be in mortal mode.
That is always a big risk for me—since I tend to throw blood clots.
Yet another family gift. But all seemed to be well, aside from being
unable to say much of anything. We were told that they had had to go
deeper into my tongue than they had figured, but they had left my
lymph nodes intact, thinking all was well.
After
a bit of time, Kennon was permitted to take me home. And then the
adventure truly began. Swallowing was not my friend. I had to really
work to drink liquids, and for a few days, my diet consisted of
mostly Gatorade, water, and milk shakes. Kennon did a fantastic job as my nursemaid, and I owe him big time for all that he did while I was recovering. Our sons and their wives and offspring also did a wonderful job of keeping my spirits up as well as providing answers to the questions we had about the medical world. And I appreciated my siblings who stepped forward to take care of our mother while I recuperated.
My ability to talk was
slightly impaired and as I’ve told people, for a couple of days, I
sounded like a combination Julia Child/Cindy Brady.
I’ve
always believed pride is a bad trait to possess, but that is what
propelled me into a determination to improve my new voice. Not only
had the left side of my tongue been carved on, but the stitches went
down into my throat, indicating that a piece of it had been taken as
well. We were just told that they had removed anything that looked
suspicious. And the fact that I now had the worst sore throat of my
life spoke silent volumes about what had taken place during the
surgery.
It
took me about two days to figure out that if I held my tongue at a
different angle, I could talk quite normally. This took some
practice, and at first, my tongue and I went the rounds over this new
position, but as time went on, it became second nature to me and my
ability to speak improved.
And
something else took place that boosted my spirits. I currently serve
in the Primary organization of our ward. Daily, we found cards and
artwork created by the children of our ward. Eventually a scrapbook
was dropped off to store all of these creations that are dear to my
heart. I will be forever grateful to the leaders and children who
took part in this endeavor—as well as to all of those who sent
cards, flowers, etc. as we faced a daily battle of pain, healing, and
hope.
My
doctor soon called with the news that the pathology report revealed
just how deep they had carved into my tongue, and because of that, I
would need a second surgery to remove the lymph nodes in my neck.
Somehow they had seen that at least 2 of them were enlarged,
(possibly compliments of a recent CT scan) and they wanted to make
sure that they had removed all of the cancer cells, fearing that some
had strayed into the lymph nodes. And so, about a week after my first
surgery, I found myself back in Logan for round two. Only this time,
the restrictions in place against the Covid virus prevented my
husband from coming with me into the hospital. He had to leave me
curbside in the hands of a very capable, awesome nurse. Fortunately,
we have family in the area (one of our sons and our daughter-in-law
and their cute kids live fairly close to Logan) so my husband had
somewhere to go while he waited. And this time, they were keeping me
overnight—it would be a long time to just wait in the car. Most of
the businesses in the area were closed—aside from drive-through
restaurants and gas stations. I was relieved that Kennon could just
stay with our kids.
As
it turned out, I had some of the same surgical nurses that day that
had been part of my tongue adventure. They were stunned by how well I
could already talk. One of the nurses told me that the doctor had
written in my chart that it would be a long time before I would be
able to communicate because of the first surgery. When he was told
that I was talking already, he had to step inside my hospital room to
see for himself. He was impressed. That’s when I reminded him that
I possess stubborn Scotch blood that helps me through adventures like
I was facing. I also had the comfort of a recent priesthood blessing
(I was promised that I would recover quickly from all of this—good
thing—my husband and I are currently serving as service
missionaries/housing coordinators for the missionaries who serve in
our valley), as well as the numerous prayers that were being offered
on my behalf. Once again I felt total peace of heart as I faced
surgery number two.
I
was told that depending on what they found with this second surgery,
I would possibly need radiation treatments to ensure that the cancer
was gone. The thought of that made me feel a bit sick. As a Type 1
diabetic, I’ve learned that everything affects my blood sugar. It
had already been bouncing a lot compliments of surgery number one. I
was sure it would continue to do so as I healed. Learning that I
might be facing radiation, too, was almost overwhelming. But once
again, my heart filled with peace as I faced this second string
bridge across a daunting canyon.
Surgery
number two went well and I was later told that twenty lymph nodes had
been removed. They had done a quick inspection of the last lymph node
during the surgery and it was cancer free. But it wouldn’t be until
the pathology report came in that we would know if any of the others
contained cancer.
I
was wheeled back to my room where I received excellent care from a
very compassionate nursing staff. And I need to pay a tribute to
these brave women and men who daily face the Covid virus. Most of my
nurses bore war wounds from wearing protective gear—especially the
masks over their faces. Their noses were nearly raw from this
requirement. My heart went out to them—they are putting their lives
on the line to help others through this trying time. I have two sons
who are also on the front lines of this disease and it is a worry,
and one of those things that I put in the Lord’s hands each day. We
need to be forever grateful to the men and women who are courageously
facing this battle.
I
did well after my second surgery—it seemed like a piece of cake
after what I had already endured after the first one. I made jokes
with my nurses about various unfunny things, and I was told by one of
them that my positive attitude would get me through all of this. I
should admit that there might have been a time or two when I didn’t
feel so upbeat, but for the most part—I have tried very hard to
keep a positive spin on things. And it has worked, as we saw two
major miracles take place.
The
first I’ve already shared—I was able to speak quite well in a
matter of days and without speech therapy. I invented my own
therapy—with help from above. The second took place about a week
after the second surgery. I’d had an appointment with my doctor for
a surgery recheck, and removal of an uncomfortable drainage tube.
However, the pathology report hadn’t come in yet. It was hinted
that I would likely face radiation as a precaution. We left that
appointment feeling a tiny bit worried over what lay ahead, so we
headed to our kid’s abode, since “Grandpa” had promised that
this “Grandma” would put in an appearance after she felt better.
It was a much needed break in our routine. And it was while we were
surrounded by family that we received the welcome news that my lymph
nodes had been cancer free and I would not need radiation.
My
doctor heard all of the cheering in the background from our kids and
grandkids, and possibly myself, and he laughed, telling me that I had
quite the cheerleaders in my life.
He’s
right—I really do! Thank you to everyone who fasted, prayed or sent
positive thoughts my way throughout this adventure. I continue to do
very well! It has taken me a bit to regain my strength, but that is
improving daily. I know this battle isn’t completely over yet—I
will be making monthly visits to my doctor for at least a year to
make sure the cancer doesn’t return. But I know I’m still here
for a reason, and I plan to make the most of my time in mortal mode.
Having
this adventure in the middle of this world-wide pandemic has helped
me keep things in perspective. I still feel peace—I know that as we
place ourselves in the Lord’s hands, miracles can take place. I
also know that we will be watched over and guided as we face the days
ahead. We aren’t crossing this scary canyon alone—there are those
who are at our side, some unseen, who continue to love us and help us
through this perilous journey we call mortal mode. And someday, we
will reach the other side as we take things step by step across the
bridge of faith.