I’ve
been asked in recent weeks if I will ever write anything again. I
have pondered doing so, but life has been a blur this past year. For
those who don’t know me or my family well, it has been a year of
supreme challenge. Our oldest son was diagnosed with Metastatic
Gastric Cancer, stage 4 in January. He spent 4 months in a Utah
hospital fighting for his life. I spent those 4 months praying,
crying, laughing, and begging for a miracle as I stayed by his side.
It tore my heart out to watch how our son suffered through radiation
treatments, chemo, physical therapy and more tests than I care to
remember. He went from being a strong, active young man, to someone
who couldn’t even lift his arms, let alone walk. The cancer had
morphed, skipping his organs (thank heavens) but it had attacked his
entire skeletal frame. After his first PET scan, we were shown,
highlighted in yellow, how much of his body was affected by this
raging cancer. It went from his shoulders, down his entire spine, and
into both legs. It didn’t help that we were told comforting things
like, “He will likely live 3 months—there is just too much damage
everywhere.” It was a dark time.
I
can’t begin to describe how this mother’s heart shattered
repeatedly as I watched my son suffer through indescribable pain each
day. I will never forget how it felt to hear him scream as he
struggled to survive the week he was in ICU, critically ill. But I
also saw his determination grow each time he was told how limited he
would be. In the beginning, they figured he would never walk again.
We were shown a large electric wheelchair that they assumed would be
the only way he would ever be able to move around. It took four
people to help him move to a gurney that they then wheeled off for
further testing/and/or radiation treatments. When they began talking
about the care he would need when he returned home, I wondered how in
the world we would be able to manage when he required so much help to
move around.
The
radiation treatments worked surprisingly well—his main oncologist
called it “spot-welding.” With each treatment, he regained the
ability to move his arms, and then his legs. By the end of his
hospital stay, he could walk several yards down the hospital hallway
with the use of a walker—something that amazed his doctors and
nurses.
The
chemo treatments made him so sick, but they also helped in the battle
we were facing. Our son was becoming a warrior, courageously fighting
each day for further movement and independence.
He
spent two weeks in a rehabilitation center after he was released from
the hospital. It was during that time that our son really began to
regain the ability to utilize what they called core strength. This
meant he could stand, supported, for a limited time using his hands
to do simple tasks on a table.
After
his release from the rehabilitation center, we were able to bring him
back to his apartment that was ironically, ten minutes away from the
cancer center in Murray. This helped greatly with his continued IV
chemo treatments and further tests. He stayed in this location until
May, when we were able to move him to our home in Idaho.
I’ve
been asked repeatedly how we survived the past few months. It is a
question I’ve pondered as well and I’ve come up with the
following list:
1.
Prayer. I’ve never prayed harder in my life. I prayed silently each
day for comfort, guidance, and the strength to endure all that we
were facing. I also felt comforting strength from the prayers of
those who prayed for us. I learned during my own adventure with
cancer in 2020 that there is strength in prayer. I’ve always had a
strong testimony of the importance of prayer, but I learned in 2020
that there is an incredible power in prayer. That testimony was
strengthened even further this past year. Prayer is a lifeline and I
hold fast to it daily.
2.
Family support. I will be forever grateful for my siblings, and other
family members who sacrificed so much to help us survive this past
year. My husband’s mother had shoulder surgery during our son’s
battle with cancer, and Kennon spent a great deal of time at home,
helping her. In his absence, my siblings took turns staying with me
and helping me deal with difficult days. As I mentioned, our single
son lived in a small apartment ten minutes away from the hospital
which also had a cancer center next door to it. This proved to be
such a blessing, since we could leave the hospital periodically to
rest, knowing we were just a few minutes away if there was an
emergency.
3.
Recognizing tender mercies. These occurred daily, and I’ll probably
never remember all of them, but each one was a reassurance that we
weren’t alone in this battle. Having our son’s apartment so close
to the hospital was a huge tender mercy. Having so many family
members close by was another tender mercy. And incidents, like the
day my clip came loose from my insulin pump. I didn’t realize it
had happened until one of my siblings dragged me down to the
cafeteria to eat a bite of something. (Let’s just say I didn’t
have much of an appetite during that arduous time.) When I reached
for my insulin pump (I’m a Type 1 diabetic), the clip was no longer
attached. My clothing had help my pump in place. Frantic, I retraced
my steps—that clip was important. I knew I could order a new one,
but it would take several days to arrive. As my sister and I hurried
through the hospital, looking for what was like finding a needle in a
haystack, I silently prayed for help.
I
felt impressed to go into the restroom I had used earlier. I entered
the stall, and felt a strong impression to look through my jeans. I
found the clip, inside one of my pant legs. It was such a relief!
This may seem like a small thing to most people, but to me it was a
huge sign that Someone was watching out for me. This small clip
could’ve been easily lost, but it wasn’t.
4.
Support from family members and friends. There is no way you can get
through a trial of this magnitude without the loving support of
family and friends. As I’ve already shared, my siblings sacrificed
so much on behalf of our family during this trial. They took turns
staying with me at my son’s apartment, and at the hospital so I
wasn’t facing hard things alone. Kennon came down in between to
help. Our second son did so much to help us sort through all of the
paperwork/financial adventures during all of this. He provided a
crucial service that quite literally saved the day. I also received
so many text messages and phone calls from friends and relatives, it
was overwhelming. But those messages were another lifeline.
Two
close friends checked on my mother for me each week. My mother was
living at the time in an assisted living center near our Idaho home,
but I had been taking her to her appointments, and bringing her out
to our home 2-3 times a week until our son went into the hospital. It
was such a comfort to know that someone was checking weekly on my
mother in my absence. One friend provided weekly Zoom chats for my
mother and me so that she could visit with me almost in person. The
other friend called me on her cell phone during her visits with my
mother so that my mom could talk to me again. Both ladies then spent
time with my mom, so that she didn’t feel like she was alone.
Another
friend who lived in the area near my son’s apartment, brought us
meals, kept in touch, and even invited Kennon & I to join her and
her husband at the Jordan Temple to do sealings one night. This
proved to be a much-needed moment of peace.
And
I can’t begin to thank everyone who donated to a “Go Fund Me,”
account that my brother and his wife opened on behalf of our son. The
outpouring of support was amazing, and very appreciated.
Another
friend was diagnosed with cancer during the time my son was in the
hospital. We kept in close contact as we faced this dreaded disease
together. Her messages were a source of comfort during our own
adventure. We still keep in touch on an almost daily basis as we
continue forward on this difficult journey.
A
favorite aunt went with my husband to help take my mother to an
appointment with her retinologist in Logan, Utah. This same lady also
took my mother to a hair appointment, providing a needed act of
service.
Another
close friend drove down to Murray one day and spent time with me and
my son at the rehab center. She then took me to lunch, and provided a
huge boost to my sagging morale.
I
could go on and on, but I think you get the idea. Letters, cards, and
care packages were sent. People surfaced/stepped forward to help when
we needed them the most, another indication that our Father was very
aware of Kris and me during this fiery trial. I should mention that
several of our son’s friends came to see him at the rehab center,
and at his apartment, and even here at our home. Their visits were
also deeply appreciated.
5.
Family time. In the beginning, when we were told comforting things
like our son was facing terminal cancer, we drew together as a
family. Our youngest son flew into Utah to be with us during the
first difficult week. This wasn’t easy for him as he was finishing
up his residency in Rapid City, South Dakota. He also drove his
family to Utah after Kris was released from the Rehab Center to his
apartment. By this time, one of my sisters had helped us get a
power-chair for Kris to use to get around in. He could walk on a
limited basis, but needed a way to maneuver when his back gave out.
The powerchair made it possible for him to go to a nearby park for a
family picnic as our family gathered all together for the first time
in nearly 2 years. (Another blessing, this power-chair breaks down
into 4 pieces and fits nicely in our trunk.)
Kris
put together a bucket list of sorts. At the top of this list was the
desire to see the ocean. We made plans in May to make that happen and
in July, our entire clan journeyed to San Diego and spent a week
together in this location. We were able to take Kris to see the ocean
several times that week in varied locations. It was a wonderful time,
and something we will always treasure.
6.
Keep hope alive. From the beginning, we refused to believe that all
was lost. Even on the darkest night when all seemed to be going
south, as they say, there was still a glimmer of light inside of my
heart that persisted in glowing. I saw that same look of
determination on Kris’ face each time he was told that he needed to
accept what was happening. And as a result, we saw repeated miracles.
The fact that Kris can now walk without his walker in our home is a
miracle. Also, we have far exceeded the three month life-span that he
was initially given. We are currently in month nine. Just saying. And
his last PET scan showed that the tumor in his stomach is gone, as is
the tumor in his lymph-nodes. The cancer was still in his entire
spine, but it was shrinking. As a result of that test, we were told
that Kris stands a really good chance of kicking this disease into
remission.
7.
Remember that attitude is everything. Someone told me that years ago.
It is still very true. I’ve seen it in my own life with the battles
I have faced compliments of Type 1 diabetes, rheumatoid arthritis,
and cancer. I’ve also seen it play a huge role in my son’s life
this past year as he has bravely faced an overwhelming diagnosis. We
quickly learned to not focus on words like: terminal, stage four, or
impossible. Instead we chose a positive approach, and that has made
all of the difference.
There
are days that are not fun. “Chemo-days,” as we call them. (Kris
is still on oral chemo.) On these days, we strive to focus on upbeat
things, funny comedies, and important items like chocolate or Coke
Zero. We’ve learned to take each day as it comes and to do the best
that we can. And we have learned to be grateful for the small things
in life that we used to take for granted.
In
short, this past year has been a time of heartache, pain, growth,
hope, and love. We have constantly felt peaceful comfort, an
indication that this life serves a purpose. There is a reason for all
things, and we are never as alone as we sometimes think we are. And
no matter what kind of journey we face, it’s important to push
forward and follow the example my mother has set for us: never give
up. We call her the Unsinkable Molly Brown (Molly Brown survived the
Titanic adventure) for a reason. And I would have to say that her
oldest grandson is living up to that legacy.